***UPDATE*** The University of Washington is looking to collect information about anyone with Joubert Syndrome who has tested positive for the new coronavirus so they…
Did you receive a prenatal diagnosis of Joubert Syndrome (JS) or other cerebellar abnormality? Maybe this is the first time you have heard the words “Joubert…
Welcome to Ask Dr. Dan, a blog series designed to answer frequently asked questions about Joubert Syndrome. The “Dan” we’re referring to is our good…
On behalf of the Joubert Syndrome and Related Disorders Foundation (JSRDF), I would like to welcome you to our favorite time of the year! You may…
You’ll soon be able to use text messages to give money to – and raise money for – the Joubert Syndrome and Related Disorders Foundation.…
Every two years there is a shift in leadership here at the Joubert Syndrome and Related Disorders Foundation. New members are selected to join the…
The board of directors for the JSRDF serve two-year terms. This spring, the JSRDF sought out applicants for the board, reviewed the applications, and selected…
Clearly, we are better together. A record 575 people from 12 countries registered for the 2019 Joubert Syndrome Family and Scientific Conference, which took place…
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