Our Role and Impact

The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.

The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The Joubert Syndrome & Related Disorders Foundation is a nonprofit organization.

This website is funded entirely by private contributions made by members and friends of the foundation.

Rare Foundation Alliance Member