Clearly, we are better together. A record 575 people from 12 countries registered for the 2019 Joubert Syndrome Family and Scientific Conference, which took place…
You did it again. You, the members of the Joubert Syndrome community, raised a whopping $28,700 by participating in our third annual Race for Rare,…
By Yosef Travis Our daughter has this little game she likes to play. It’s actually a game her grandfather plays with all of his grandchildren, but…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of…
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