JSRDF Blog

Connecting families with insights and love

09.15.17

Looking back on the 2017 JSRDF Family & Scientific Conference

It’s been more than a month since the end of the conference, so we figured it was high time (way past high time, actually!) to say farewell to Phoenix – and point out just a few of the things that made this year’s conference so special. 1. It was huge. More than 500 people from […]

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08.11.17

“I am Isabella” – A School Team Tool

  It’s August, and the excitement, anticipation, and, yes, fear of the back-to-school rituals are palpable across neighborhoods. No matter what your child’s actual school start date is, the moments of preparation leading up to that day have become an annual tradition for most families with school-age children. It’s fun, it’s hectic, and our kids […]

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07.13.17

New JSRDF Executive & Board Member Election Process

Incoming President Larry Munger, and outgoing Past President Stephen Mack, share some important updates to the JSRDF Executive and Board Member election process. Please take a moment to watch each video for new information and exciting announcements. Thank you for being part of the JSRDF community!

Read Categories: JSRDF Update
07.11.17

Reflections from Board Members Departing in 2017

Every two years there is a shift in leadership here at the Joubert Syndrome and Related Disorders Foundation. New members are elected to the Board of Directors, and we say thank you to the wonderful people who have served two terms and are now cycling off of the team. As we prepare to announce new […]

Read Categories: JSRDF Update
05.26.17

Sneak Peek at the 2017 JSRDF Conference!

  The 2017 Joubert Syndrome & Related Disorders Foundation Family and Medical Conference is fast approaching! It’s happening July 19th-22nd in beautiful Phoenix, Arizona. Conference co-chair Jenni Swenson offers us a peek into some of the wonderful activities and agenda items in store for participants.  As we approach these last few weeks leading up to […]

Read Categories: Events, JSRDF Update