October is JS Awareness Month

Together we can make a difference!

During the month of October, we are asking for your help to spread awareness of Joubert Syndrome and raise funds to support the Joubert Syndrome & Related Disorders Foundation. The two main initiatives of this program are the $31k in 31 Days Fundraiser and the “I Am Joubert” awareness campaign.

$31k in 31 Days Fundraiser

Our goal is to raise $31,000 in the 31 days of the month of October to bring awareness and funds to the JSRDF for continued family support resources and for building new programs benefiting the families affected by Joubert Syndrome worldwide. Together we can make a difference!

The easiest way to participate is to simply share the $31k in 31 Days page throughout your network during the month of October and ask people to contribute in honor of a loved one with Joubert Syndrome. If you plan to host a fundraising event in your area, our new Awareness Toolkits are a great resource for educating your attendees and potential donors. They can be purchased at a small fee in the JSRDF store.

For more information on the $31k in 31 Days Fundraiser or any questions on fundraising opportunities, tips or ideas, please reach out the JSRDF Fundraising Committee Co-Chairs, Meghann Rutledge and Jenny Grabruck. They can help to provide you with potential donor ideas, ideas for how to raise $250 in 7 days, fundraising ideas and more!

Fundraising Status

Between the $31K in 31 Days campaign page and personal fundraisers, we have raised $37,739 towards our $31,000 target! Thank you for your support.

#00AE41 Raised 37,739 $ towards the 31,000 $ target.


Raise Awareness - I Am Joubert Campaign

Individuals with Joubert Syndrome are rare, strong, brave, smart, loved, silly, hopeful, and so much more. By using the “I Am Joubert” profile frame and cover image, you help spread the word Joubert is more than just a syndrome, it has faces who need our support!

  • To access the Facebook Frame, visit https://www.facebook.com/profilepicframes and search for “Joubert”.
  • Use this image as your Facebook  cover image:
    (Right click the image and select “save as” to download)

JS Awareness Month FB Cover