Visual impairments are fairly common among individuals with Joubert syndrome. For instance, most are born with ocular motor apraxia, a condition that makes it hard to…
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way…
Contact Us Email the Finance Committee View the numerous opportunities to get involved Email our Family Support Committee Chair Donations in check form to:JSRDFPO Box #84Spokane,…
First and foremost, we want to thank you for visiting our website and seeking to learning more about Joubert Syndrome. Considering the crucial role of medical…
By Ayah Young To put it mildly, I’m finding life during the coronavirus pandemic to be overwhelming. Not only do we have to limit our…
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