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News & Resources
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I…
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain…
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and…
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way…
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I…
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain…
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and…
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way…