October is Joubert Syndrome Awareness month. All month long, the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community to…
October is Joubert Syndrome Awareness month. All month long, the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community to…
Hello JS community, October is Joubert Syndrome Awareness month, and once again the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community…
James Leach has a line he uses whenever someone tells him that his son doesn’t look like he has Down’s Syndrome. “Ah, it’s his off…
In a way, Roselyn Kanja’s family is lucky compared to other Kenyan families affected by rare diseases. Roselyn lives in Nairobi, one of the…
Join us for the 9th Annual Race for RARE The Race for RARE is a virtual 5k benefiting the Joubert Syndrome and Related Disorders Foundation. It…
By Chuck Soder Anyone else feel like they’re slowly turning into a hermit? Of course, even if you are, you may not have noticed. I didn’t…
By Jenni Swenson The month of October is now in our rearview mirrors and what an incredible month to reflect on as we head into 2018!…
By Chuck Soder The 2017 Race for RARE raised roughly $10,000 for the Joubert Syndrome and Related Disorders Foundation – far more than organizers had anticipated.…
Page 9 of 12