October is Joubert Syndrome Awareness Month — a time to acknowledge the challenges faced by those affected by Joubert syndrome and to celebrate the many
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and
By Henry Nalker Henry Nalker is a budding musical therapist, a disability advocate, and an adult with Joubert Syndrome. My name is Henry Nalker and
Hello and welcome to the 2020 edition of Joubert Syndrome Awareness Month! October is always our favorite time of year, but this year it might just
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way
By Ayah Young To put it mildly, I’m finding life during the coronavirus pandemic to be overwhelming. Not only do we have to limit our
On behalf of the Joubert Syndrome and Related Disorders Foundation (JSRDF), I would like to welcome you to our favorite time of the year! You may
You’ll soon be able to use text messages to give money to – and raise money for – the Joubert Syndrome and Related Disorders Foundation.
Clearly, we are better together. A record 575 people from 12 countries registered for the 2019 Joubert Syndrome Family and Scientific Conference, which took place
You did it again. You, the members of the Joubert Syndrome community, raised a whopping $28,700 by participating in our third annual Race for Rare,