Welcome to Ask Dr. Dan, a blog series designed to answer frequently asked questions about Joubert Syndrome. The “Dan” we’re referring to is our good
On behalf of the Joubert Syndrome and Related Disorders Foundation (JSRDF), I would like to welcome you to our favorite time of the year! You may
You’ll soon be able to use text messages to give money to – and raise money for – the Joubert Syndrome and Related Disorders Foundation.
Every two years there is a shift in leadership here at the Joubert Syndrome and Related Disorders Foundation. New members are selected to join the
The board of directors for the JSRDF serve two-year terms. This spring, the JSRDF sought out applicants for the board, reviewed the applications, and selected
Clearly, we are better together. A record 575 people from 12 countries registered for the 2019 Joubert Syndrome Family and Scientific Conference, which took place
You did it again. You, the members of the Joubert Syndrome community, raised a whopping $28,700 by participating in our third annual Race for Rare,
By Yosef Travis Our daughter has this little game she likes to play. It’s actually a game her grandfather plays with all of his grandchildren, but
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our
