The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list,…
Joubert syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns, and intellectual disability. These issues…
Healthcare Recommendations Overview Dan Doherty, MD, PhD Developmental-Behavioral Pediatrics, Department of Pediatrics, University of Washington School of Medicine Center for Integrative Brain Research, Seattle Children’s Research…
Q&A With The Incoming JSRDF President, Melissa Fields What inspired you to join the board and when did you begin your volunteer journey with JSRDF? A…
31 Ways to Make an Impact This October Fundraising Ideas for Every Family Want to support JSRDF’s $31K in 31 Days campaign but not sure where…
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