The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list,…
Joubert syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns, and intellectual disability. These issues…
Healthcare Recommendations Overview Dan Doherty, MD, PhD Developmental-Behavioral Pediatrics, Department of Pediatrics, University of Washington School of Medicine Center for Integrative Brain Research, Seattle Children’s Research…
Faith. Hope. Love. Rare. Celebrate Something Truly Special with Every Sip A limited-edition bourbon in partnership with Bespoken Spirits for those who believe in bold flavor,…
Living with or caring for someone with Joubert Syndrome can be a journey filled with questions, emotions, and moments where you just wish someone else understood…
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