October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising…
President Stephen Mack’s Reflections & Impact As Stephen Mack prepares to conclude his term as President of the Joubert Syndrome & Related Disorders Foundation (JSRDF), we…
Faith. Hope. Love. Rare. Celebrate Something Truly Special with Every Sip A limited-edition bourbon in partnership with Bespoken Spirits for those who believe in bold flavor,…
Living with or caring for someone with Joubert Syndrome can be a journey filled with questions, emotions, and moments where you just wish someone else understood…
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I…
Page 2 of 12