Category: JSRDF Update

07.13.17

New JSRDF Executive & Board Member Election Process

Incoming President Larry Munger, and outgoing Past President Stephen Mack, share some important updates to the JSRDF Executive and Board Member election process. Please take a moment to watch each video for new information and exciting announcements. Thank you for being part of the JSRDF community!

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07.11.17

Reflections from Board Members Departing in 2017

Every two years there is a shift in leadership here at the Joubert Syndrome and Related Disorders Foundation. New members are elected to the Board of Directors, and we say thank you to the wonderful people who have served two terms and are now cycling off of the team. As we prepare to announce new […]

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05.26.17

Sneak Peek at the 2017 JSRDF Conference!

  The 2017 Joubert Syndrome & Related Disorders Foundation Family and Medical Conference is fast approaching! It’s happening July 19th-22nd in beautiful Phoenix, Arizona. Conference co-chair Jenni Swenson offers us a peek into some of the wonderful activities and agenda items in store for participants.  As we approach these last few weeks leading up to […]

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03.17.17

Welcome to the JSRDF Blog!

Hello and welcome! We are extremely excited to launch our new blog. Our overall goal for this space is to connect you, and our community, with any information that we think may be beneficial. There will be articles about what is going on with the Joubert Syndrome Foundation, new or existing published articles on JS, […]

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