Category: JSRDF Update


$31k in 31 Days – Thanks & Recognition

By Jenni Swenson The month of October is now in our rearview mirrors and what an incredible month to reflect on as we head into 2018! For the first time, the JSRDF promoted the month of October as Joubert Syndrome Awareness Month and with that, the first ever foundation sponsored fundraising campaign; $31k in 31 […]

Read Categories: $31k in 31 Days, Fundraising, JS Awareness Month, JSRDF Update

2017 JSRDF Board Retreat

  I’ve been really excited since getting back from the Joubert Syndrome and Related Disorders Foundation board retreat in Kansas City. Excited … and just a little bit nervous. Why? Because we have a lot of work to do. On Friday, Sept. 22 – the first night of the two-day retreat – new board president […]

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New JSRDF Executive & Board Member Election Process

Incoming President Larry Munger, and outgoing Past President Stephen Mack, share some important updates to the JSRDF Executive and Board Member election process. Please take a moment to watch each video for new information and exciting announcements. Thank you for being part of the JSRDF community!

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Reflections from Board Members Departing in 2017

Every two years there is a shift in leadership here at the Joubert Syndrome and Related Disorders Foundation. New members are elected to the Board of Directors, and we say thank you to the wonderful people who have served two terms and are now cycling off of the team. As we prepare to announce new […]

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Sneak Peek at the 2017 JSRDF Conference!

  The 2017 Joubert Syndrome & Related Disorders Foundation Family and Medical Conference is fast approaching! It’s happening July 19th-22nd in beautiful Phoenix, Arizona. Conference co-chair Jenni Swenson offers us a peek into some of the wonderful activities and agenda items in store for participants.  As we approach these last few weeks leading up to […]

Read Categories: Events, JSRDF Update