If the Shoe Fits…
June 7, 2019
No Comments
By Yosef Travis Our daughter has this little game she likes to play. It’s actually a game her grandfather plays with all of his grandchildren, but
Days
Hours
Minutes
Seconds
By Yosef Travis Our daughter has this little game she likes to play. It’s actually a game her grandfather plays with all of his grandchildren, but
October is Joubert Syndrome Awareness month. All month long, the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community to
October is Joubert Syndrome Awareness month. All month long, the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community to
Hello JS community, October is Joubert Syndrome Awareness month, and once again the Joubert Syndrome and Related Disorders Foundation is encouraging members of the JS community
James Leach has a line he uses whenever someone tells him that his son doesn’t look like he has Down’s Syndrome. “Ah, it’s his off
In a way, Roselyn Kanja’s family is lucky compared to other Kenyan families affected by rare diseases. Roselyn lives in Nairobi, one of the
By Chuck Soder Anyone else feel like they’re slowly turning into a hermit? Of course, even if you are, you may not have noticed. I didn’t
By Jenni Swenson The month of October is now in our rearview mirrors and what an incredible month to reflect on as we head into 2018!
By Chuck Soder The 2017 Race for RARE raised roughly $10,000 for the Joubert Syndrome and Related Disorders Foundation – far more than organizers had anticipated.
October is here and as we head into fall, we are also heading into our first Joubert Syndrome Awareness month. For the first time this