On behalf of the Joubert Syndrome and Related Disorders Foundation (JSRDF), I would like to welcome you to our favorite time of the year! You may
By Jenni Swenson The month of October is now in our rearview mirrors and what an incredible month to reflect on as we head into 2018!
By Chuck Soder The 2017 Race for RARE raised roughly $10,000 for the Joubert Syndrome and Related Disorders Foundation – far more than organizers had anticipated.
October is here and as we head into fall, we are also heading into our first Joubert Syndrome Awareness month. For the first time this