Q&A With The Incoming JSRDF President, Melissa Fields What inspired you to join the board and when did you begin your volunteer journey with JSRDF? A
31 Ways to Make an Impact This October Fundraising Ideas for Every Family Want to support JSRDF’s $31K in 31 Days campaign but not sure where
October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising
President Stephen Mack’s Reflections & Impact As Stephen Mack prepares to conclude his term as President of the Joubert Syndrome & Related Disorders Foundation (JSRDF), we
Living with or caring for someone with Joubert Syndrome can be a journey filled with questions, emotions, and moments where you just wish someone else understood
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way
