Blog
Q&A With The Incoming JSRDF President, Melissa Fields What inspired you to join the board and when did you begin your volunteer journey with JSRDF? A…
31 Ways to Make an Impact This October Fundraising Ideas for Every Family Want to support JSRDF’s $31K in 31 Days campaign but not sure where…
October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising…
President Stephen Mack’s Reflections & Impact As Stephen Mack prepares to conclude his term as President of the Joubert Syndrome & Related Disorders Foundation (JSRDF), we…
Living with or caring for someone with Joubert Syndrome can be a journey filled with questions, emotions, and moments where you just wish someone else understood…
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I…
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain…
October is Joubert Syndrome Awareness Month — a time to acknowledge the challenges faced by those affected by Joubert syndrome and to celebrate the many…
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and…