Blog
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain…
October is Joubert Syndrome Awareness Month — a time to acknowledge the challenges faced by those affected by Joubert syndrome and to celebrate the many…
Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and…
Ask Dr. Dan is a blog series featuring Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain Malformation…
By Henry Nalker Henry Nalker is a budding musical therapist, a disability advocate, and an adult with Joubert Syndrome. My name is Henry Nalker and…
Ask Dr. Dan is a blog series featuring Dr. Dan Doherty, who since 2004 has been researching Joubert Syndrome through the University of Washington Hindbrain…
Hello and welcome to the 2020 edition of Joubert Syndrome Awareness Month! October is always our favorite time of year, but this year it might just…
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it. Our world changed abruptly last spring when the pandemic inched its way…
By Ayah Young To put it mildly, I’m finding life during the coronavirus pandemic to be overwhelming. Not only do we have to limit our…