The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list,…
Joubert syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns, and intellectual disability. These issues…
Healthcare Recommendations Overview Dan Doherty, MD, PhD Developmental-Behavioral Pediatrics Department of Pediatrics, University of Washington School of Medicine Center for Integrative Brain Research, Seattle Children’s Research…
So, you’re thinking about attending your first-ever JSRDF Conference—or maybe you’ve already registered (yay!). Either way, you might be wondering: What’s it really like? Will I…
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