Search Results - Joubert Syndrome & Related Disorders Foundation
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Our Role and Impact
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list,…
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Scientific Advisors
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What is Joubert Syndrome?
Joubert syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns, and intellectual disability. These issues…
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Words From Our Experts
Healthcare Recommendations Overview Dan Doherty, MD, PhD Developmental-Behavioral Pediatrics Department of Pediatrics, University of Washington School of Medicine Center for Integrative Brain Research, Seattle Children’s Research…
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Volunteer
In 1992, the Joubert Syndrome and Related Disorders Foundation (JSRDF) started as a group of mothers coming together around a kitchen table to create a better…
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Events
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Media Kit
We’re thrilled you’re interested in using our brand to represent the JSRDF in your fundraising and outreach efforts.  Our brand guidelines are designed to be flexible…
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