Month: October 2017

Race for Rare 2017 Recap

October 26, 2017 No Comments

By Chuck Soder The 2017 Race for RARE raised roughly $10,000 for the Joubert Syndrome and Related Disorders Foundation – far more than organizers had anticipated.

$31k in 31 Days

October 1, 2017 No Comments

October is here and as we head into fall, we are also heading into our first Joubert Syndrome Awareness month. For the first time this

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Month: October 2017

Race for Rare 2017 Recap

$31k in 31 Days

help us continue our work