Faith. Hope. Love. Rare.
Celebrate Something Truly Special with Every Sip
A limited-edition bourbon in partnership with Bespoken Spirits for those who believe in bold flavor, strong community, and rare resilience. With each bottle you purchase, 25% of proceeds go directly to support the Joubert Syndrome & Related Disorders Foundation (JSRDF).
2025 NPHP1 Edition
NOTE: There are over 30 genes now known to be affiliated with Joubert Syndrome, known as ‘causative genes’, with NPHP1 being the first ever to be discovered (reference) in 2004.
JSRDF will introduce a new special-edition vintage for each known causative gene annually in the order they were discovered.
The Story Behind the Bottle
Blended with Purpose. Bottled with Heart
We were brought together by a rare diagnosis, but now we can’t imagine a world without each other. This rare batch bourbon, crafted in partnership with Bespoken Spirits in the great state of Kentucky, is a celebration of our community’s resilience.
It’s a testimony to everything rare: rich color, deep flavor, and the joy that lives even in the most unexpected places.
About the Bourbon
A flavor as bold as our mission.
Crafted by Bespoken Spirits | Kentucky Rare Batch | Limited Edition
Small-batch bourbon aged with precision for smooth character
Tasting notes: cookies & cream, pumpernickel, & ginger
Finishing: toasted & charred American oak
59% ABV | 118 proof
750ml limited run
Crafted in Kentucky, bottled with care
Perfect for collectors, connoisseurs, or thoughtful gifting.
(artist rendering; updated bottle imagery will be added once available)
Raise a Glass for a Rare Cause
Your support directly impacts families navigating life with Joubert Syndrome—a rare neurological genetic disorder. Our foundation funds support, community events, a biennial conference, advocacy efforts, and other programming to support families affected.
Because when you’re part of something rare, every contribution counts.