It’s been more than a month since the end of the conference, so we figured it was high time (way past high time, actually!) to say
It’s August, and the excitement, anticipation, and, yes, fear of the back-to-school rituals are palpable across neighborhoods. No matter what your child’s actual school start
The 2017 Joubert Syndrome & Related Disorders Foundation Family and Medical Conference is fast approaching! It’s happening July 19th-22nd in beautiful Phoenix, Arizona. Conference co-chair
The 1st Annual Race for Rare Virtual 5k is coming this fall! Co-organizers Meghann Grace and Jenni Swenson have been hard at work getting the logistics
Hello and welcome! We are extremely excited to launch our new blog. Our overall goal for this space is to connect you, and our community, with