October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising $31,000 in just 31 days. This goal isn’t just a number. It’s the means to strengthen our community, connect families across the globe, and ensure that no one living with Joubert Syndrome feels alone.
The Power of Your Story
- Families have always been our strongest advocates.
- Sharing your journey — the challenges and the triumphs — inspires people to give.
How You Can Get Involved
- Become a fundraiser — it’s easier than you think!
- Share our posts, ask friends to give even just $31, or start a challenge (walk 31 miles, read 31 books with your kids, etc.).
Tools to Help You Succeed
- Downloadable toolkit with pre-made graphics and captions.
- Step-by-step setup for Classy fundraisers.
- Ideas for your own fundraising efforts
- Sample email template to send to friends and family.
This campaign belongs to all of us.
Every post, every share, every dollar raised gets us closer to our $31,000 goal — and closer to a world where Joubert Syndrome is better understood and supported.
📥 Sign up as a fundraiser and get your toolkit today.


