Be the Voice That Changes Lives: Join $31K in 31 Days - Joubert Syndrome & Related Disorders Foundation
Days
Hours
Minutes
Seconds
Share this article:

October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising $31,000 in just 31 days. This goal isn’t just a number. It’s the means to strengthen our community, connect families across the globe, and ensure that no one living with Joubert Syndrome feels alone.

The Power of Your Story

  • Families have always been our strongest advocates.
  • Sharing your journey — the challenges and the triumphs — inspires people to give.

How You Can Get Involved

  • Become a fundraiser — it’s easier than you think!
  • Share our posts, ask friends to give even just $31, or start a challenge (walk 31 miles, read 31 books with your kids, etc.).

Tools to Help You Succeed

  • Downloadable toolkit with pre-made graphics and captions.
  • Step-by-step setup for Classy fundraisers.
  • Ideas for your own fundraising efforts
  • Sample email template to send to friends and family.

This campaign belongs to all of us.

Every post, every share, every dollar raised gets us closer to our $31,000 goal — and closer to a world where Joubert Syndrome is better understood and supported.

📥 Sign up as a fundraiser and get your toolkit today.

  ***UPDATE*** The University of Washington is looking to collect information about anyone with Joubert Syndrome who has tested positive for the new coronavirus so they…
This blog series highlights the JSRDF Board members and the committees they serve on. The JSRDF is a 100% volunteer-run nonprofit. Through the dedication of our…