Helping Families All Around The World - Joubert Syndrome & Related Disorders Foundation
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Wherever you are in your journey, we can help.

Since 1992, the Joubert Syndrome & Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge, experience, and emotional support. Join our community today. Together we can do so much.

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News & Resources

Dan Doherty
Ask Dr. Dan is a blog series that features Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain…
man and smiling woman speaking ASL
  Hello everyone!!! I’m Emily Angeloff, and I have Joubert Syndrome. Today I am posting this because sign language was my first mode of communication and…
child holding stuffed animal getting vaccine shot
Ask Dr. Dan is a blog series featuring Dr. Dan Doherty, who since 2004 has been researching Joubert syndrome through the University of Washington Hindbrain Malformation…
children wearing masks at a school with teacher checking temperature
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it.  Our world changed abruptly last spring when the pandemic inched its way…