Joubert Syndrome & Related Disorders Foundation | Helping Families All Around The World - Joubert Syndrome & Related Disorders Foundation
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Wherever you are in your journey, we can help.

Since 1992, the Joubert Syndrome & Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge, experience, and emotional support. Join our community today. Together we can do so much.

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October is JS Awareness Month!
Sign-up to be a fundraiser and help us raise $31,000 in 31 days and together we can make a difference.
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Fundraising Kit
By becoming a fundraiser for our $31K in 31 Days campaign, you’ll raise vital funds for programs that connect and support families living with Joubert Syndrome.We’ll give you everything you need — from sample posts to email templates — so you can focus on sharing your journey and inspiring generosity.
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RARE BATCH BOURBON FUNDRAISER
A limited-edition bourbon in partnership with Bespoken Spirits for those who believe in bold flavor, strong community, and rare resilience. With each bottle you purchase, 25% of proceeds go directly to support the Joubert Syndrome & Related Disorders Foundation (JSRDF).
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News & Resources

Expanding The Fields of Opportunity
Q&A With The Incoming JSRDF President, Melissa Fields What inspired you to join the board and when did you begin your volunteer journey with JSRDF? A…
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31 Ways to Make an Impact This October
31 Ways to Make an Impact This October Fundraising Ideas for Every Family  Want to support JSRDF’s $31K in 31 Days campaign but not sure where…
Read More
Be the Voice That Changes Lives: Join $31K in 31 Days
October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising…
Read More
President Stephen Mack’s Reflections & Impact 
President Stephen Mack’s Reflections & Impact As Stephen Mack prepares to conclude his term as President of the Joubert Syndrome & Related Disorders Foundation (JSRDF), we…
Read More
Expanding The Fields of Opportunity
Q&A With The Incoming JSRDF President, Melissa Fields What inspired you to join the board and when did you begin your volunteer journey with JSRDF? A…
Read More
31 Ways to Make an Impact This October
31 Ways to Make an Impact This October Fundraising Ideas for Every Family  Want to support JSRDF’s $31K in 31 Days campaign but not sure where…
Read More
Be the Voice That Changes Lives: Join $31K in 31 Days
October is Joubert Syndrome Awareness Month — and this year, the Joubert Syndrome & Related Disorders Foundation (JSRDF) is taking on our boldest challenge yet: raising…
Read More
President Stephen Mack’s Reflections & Impact 
President Stephen Mack’s Reflections & Impact As Stephen Mack prepares to conclude his term as President of the Joubert Syndrome & Related Disorders Foundation (JSRDF), we…
Read More
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