Helping Families All Around The World - Joubert Syndrome & Related Disorders Foundation
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Countdown to Rare Disease Day - February 29!

Wherever you are in your journey, we can help.

Since 1992, the Joubert Syndrome & Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge, experience, and emotional support. Join our community today. Together we can do so much.

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News & Resources

children wearing masks at a school with teacher checking temperature
By Melissa Fields Let’s face it: COVID-19 has changed life as we know it.  Our world changed abruptly last spring when the pandemic inched its way…